Wednesday, October 25, 2006
PCD Spooky Walk
Dear Family & Friends:
As some of you know, two very close friends of mine (Ken & Kathryn) suffer from Primary Ciliary Dyskinesia (PCD), which is an inherited disorder of the structure and/or function of cilia. People with PCD do not have functioning cilia. Their cilia may be completely paralyzed (immotile cilia), beat inadequately or in an ineffective fashion (dyskinetic cilia), or may not have developed at all (ciliary aplasia). Without functioning cilia, people with PCD are unable to protect their respiratory system. Frequent infections of the lungs, ears, throat, and sinuses are common.
For more information on PCD, please click here.
Em & I are participating in the San Diego PCD Spooky Walk on October 29th. (To read Kathryn's blogpost on this great fundraiser, click here.)
The mission of the PCD Foundation, a non-profit patient organization, is to raise funds for research, and provide education and support for people with inherited ciliary disorders (primary ciliary dyskinesia or PCD).
PCD is a genetic disorder that results in chronic lung, ear and sinus infections, and problems with fertility. Untreated organ damage from PCD can lead to hearing loss, impaired lung function, and even the need for lung transplant.
Chronic lung diseases, like PCD, are a major cause of disability and early death in this country. Research efforts are crucial to understanding diseases like PCD, and for improving treatment and finding a cure. The PCD Foundation Walk-a-Thon will raise funds to support programs and research projects. I am walking to support these efforts and am asking you for a donation (of whatever you can spare) to sponsor me. Your charitable donation is tax-deductible.
Please make your checks payable to the PCD Foundation, write "SD Walk, Molly Lawless" on the memo line, and send to the following address:
PCD Foundation
29252 N. 22nd Lane
Phoenix, AZ 85085
Donations can also be made via the PCDF website by clicking here. Please share this information with your family and friends. We need all the support you can provide!
Thank you very much,
Molly
Phone: (612)396-1179
Fax: (612)929-0510
E-mail: info@pcdfoundation.org
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